ON OUR SITE

• + home
• + photos
• + music
• + email us

OTHER LINKS

• + brandon and jennifer
• + ijm
• + kellie buffington

• January 2004

• February 2004

• March 2004

• April 2004

• May 2004

• July 2004

• August 2004

• September 2004

• October 2004

• November 2004

• December 2004

• January 2005

• February 2005

• March 2005

• April 2005

• May 2005

• June 2005

• July 2005

• August 2005

• September 2005

• October 2005

• November 2005

• December 2005

• January 2006

• February 2006

• March 2006

• April 2006

• May 2006

• July 2006

• August 2006

• September 2006

• October 2006

• November 2006

• December 2006

• February 2007

• March 2007

• April 2007

• May 2007

• June 2007

• July 2007

• August 2007

Thursday, August 17, 2006

Eli Update

Our doctor appointment went very well yesterday. One thing I love about Dr. Kojic is how calm and laid back she is. Everyday she deals with children who have seizures. She does not panic with each one, therefore she is able to be a reasonable voice of encouragement to us parents when we bring our children in.

I was encouraged by our visit with her yesterday. She basically said that the medicine Eli is currently on, Topamax, is not working well for him. She called these seizures 'breakthrough' seizures since they are breaking through the barrier the medicine lays down. She didn't think they were caused by his condition worsening. She thought the simple answer would be switching medication.

So here we go again. We started the new drug last night. We will stay on the full dose of Topamax while we gradually increase the dose of the new drug. This means that in 2 1/2 months Eli will be on a full dose of two medications. Then at that point we will slowly wean him off of the Topamax and he will maintain the full dose of the new drug.

I am hopeful that this new medication will work well in protecting Eli from seizures. In addition the new drug is appetite neutral. This will hopefully help Eli to start gaining the weight he needs. Eli has progressively been losing weight since January. I was disheartened to find at his latest weigh-in yesterday that he had still lost more weight. Please pray for Eli's appetite, that he gains the weight he needs to gain. He is healthy and thriving, but I want this to continue. Please pray for Eli about this as well as the seizures.

Dr. Kojic also wrote a prescription for Eli to get another MRI done on his brain. She wants to get a closer look at his injuries and how they are healing. We had one done about a year ago and it was quite an ordeal for Eli. Since he is so young he has to be sedated for the procedure. I will schedule the test soon and surely put out another prayer request as that test approaches.

Thank you for your continued prayers for us throughout this hard season. It has been scary and challenging but by the grace of God we are making it through one day at time. Please keep covering us in prayer as right now it is much needed. I came down with a fever last night which I believe might be in part due to all the stress of handling this with Eli. Pray for my health and strength so I can be here for Eli in all the ways he needs me right now.

Bless you all. Thank you for the blanket of prayers over us.