Reminders
Eli's visit with Dr. Kojic last Monday went very well. Every time we visit her we realize more of the miracle that Eli is. She reminded us of how amazing Eli's recovery has been. She reminded us of how dim his recovery looked in those first weeks after the accident. She reminded us of how excited we all were when Eli looked to the left side for the first time. I do remember that moment- all of us by his hospital bed were cheering with delight.
I needed to remember just how far Eli has come. It makes everything he can do now even more amazing. Dr. Kojic said that the problems he has now are small potatoes compared to where he was. He is doing so many things that we at one point thought would be impossible for him. He is so strong and God has been so gracious in healing him.
There are things that Eli still can not do that he is a little behind developmentally on. Because of that we all decided that it would be best for Eli to be evaluated by a therapist. Then they can decide if it is time and if there is a real need for Eli to have extra help to learn some of the skills he needs to learn. They might see it as beneficial or they might say lets give him another 6 months to try it on his own and then we will assess the situation again at that point.
Either way I am glad Eli will be able to get whatever he needs- be it more time or more help. I want him to have all that he needs and all the opportunities that he can to be the best little boy possible. He is such a blessing to me and I want the best for him. I want to do whatever it takes for him.
Another outcome of our time with Dr. Kojic was that we decided it was time to change Eli's medicine. He has been taking Phenobarbital twice a day. But now we are in the process of switching to a drug with less side affects called Topamax. For a few weeks Eli will be on a full dose of both drugs- once he is responding well to them both then we will wean him off of the Phenobarbital and he will only be on a full dose of the Topamax twice a day. This whole process will take a few months.
I am glad for the change in his medicine. I hope he will do better on the Topamax because of the lower risk of side affects. The new drug is in a sprinkle for and looks a lot like what you'd put on top of ice cream. I have been putting it into a small amount of pudding and giving it to him as desert right before bed. He really likes it. This is a much easier way of giving him medicine then the Phenobarbital was.
Thank you for your continued prayers. We still need them and Eli is still healing and recovering. I was again reminded of how drastically traumatic his injuries were which only helps to point to God's glory and powerfully gracious healing of my precious little boy. All praise be to God!
posted by Kellie # 8:50 AM
